contact & imprint

WP 8:

Host: The Cure Parkinson‘s Trust

 

The Cure Parkinson‘s Trust Logo

 

PI:
Tom Isaacs

Co-Workers:
Dr. Joy Duffen
Helen Mathews

Project 8

Coordination/Network/Training/Activities and Facilitating the 'Voice' of People With Parkinson's

The Cure Parkinson’s Trust (CPT) role within SENSE-PARK is to ensure that the needs of people with Parkinson’s are at the heart of the project. CPT has involved people with Parkinson’s at every stage, from identifying which symptoms are the most important to monitor, to identifying what type of IT equipment is preferred and we communicate our findings to our SENSE-PARK partners. We engage people living with Parkinson’s in discussing the importance of measurement, through our online communities, through face to face meetings and focus groups and we communicate effectively the aims and progress of the project to those who will benefit from it.